Recognition Without The Name

It’s hard to believe that my mother-in-law, Joann Schulenberg has been in Heaven for four years now. Her passing took time. Alzheimer’s Disease is a slow killer, in comparison to other diseases. That doesn’t make Alzheimer’s Disease any less devastating, and in fact, it just might be more devastating, because before the end comes, the patient has already lost their memory. Still, if you look for the good in the situation, you might just find that while they may not remember many new things, including who you are, now that you are grown up, they have many old memories that can really enrich your life…if you are willing to listen to their stories.

My mother-in-law often wasn’t sure of our names when we came to visit her, but by the look on her face and the alertness of her posture, you knew that she knew that you belonged to her. Many people place a lot of emphasis on the patient knowing their family’s names, but that is just setting yourself up for sadness. And you miss the recognition that comes without the name. My mother-in-law did so much for so many people…from knitting, to crocheting, to sewing, to cooking, my mother-in-law did a lot for the people around her. She lived a good long life, much of it raising the vegetables and meat for the family. She saw eras of time that people today can’t understand. With depression and recession, boom and bust, mining and agriculture, she had a diverse viewpoint, and that made her, unlike the rest of the people around her knowledgeable in different ways of life.

As her disease progressed, my mother-in-law, lost her recent memories, but she retained the old memories, and she passed them along to her family…often in the funniest ways. One minute you might find yourself telling her what time to get on the school bus, the next you think you have her all figured out when she tells you that they are having dinner at your house…like you aren’t you. When you try to play along, and ask her what the “imaginary you” will be cooking, suddenly she was back and making you feel ridiculous, by saying, “I don’t know, what are you cooking?” I know people consider Alzheimer’s Disease to be a tragic, devastating disease, and I suppose it is, but when people think about how devastating Alzheimer’s is, they are thinking of themselves…what they are missing out on, not thinking about the patient…who won’t remember grief or loss, who gets to become younger in their mind, and who ends up without a care in the world. Attitude is a big part of dealing with Alzheimer’s Disease, and I don’t mean the attitude of the patient, I mean the attitude of the family. It makes all the difference in the world. Four years ago, my mother-in-law left us for Heaven, where her mind is clear again. I am truly happy for her, even though we miss her very much.

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2 Responses to Recognition Without The Name

  1. Jen says:

    As someone who volunteered doing pet therapy for over a decade at nursing homes, I remember many residents who were suffering from the effects of alzheimer’s disease, I know all too well how the disease robs individuals of their memory and their life. Family members understand on the surface, but don’t always understand emotionally. They are hurt that they are not remembered, sometimes even offended. I don’t think it is something they are cognizant that they are doing. I think it has more to do with the inability to accept what is at any given moment with the disease. Holding steadfast to “what was” is a set up for heartache. Alzheimer’s is a terrible disease it ravages the mind, ultimately the body, and it ravages the family.

  2. DEB ANDREWS says:

    Oh my gosh, Caryn, you brought back some memories for me. I love your blog as it helps explain some about dementia. Alzheimer is just one kind of dementia. Dementia is the big umbrella and under it falls Alzheimers, vascular dementia, Parkinson Dementis, Alcohol induced Dementia. My mom had Vascular (mini strokes in the brain) dementia. She would cry in the beginning as she knew she couldn’t do different things anymore. I would pray for God to please slow it down. Of course I was thinking of me. Once she stepped over that line so to say, she stopped crying. I felt so bad because essentially I was praying for her to stay in that not good space for her. she has been gone 12 years now. Sorry this is so long however I hope many people read your blog and hopefully my comment that you and I will have taught them something about this disease. Thank you.

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