nursing home

DebbieIMG_5169Over the years, my sister-in-law, Debbie Cook has tried her hand at a variety of different crafts. Debbie had always done a lot of sewing, and had made her daughters clothing. Sewing was never really my thing, although I could sew if I wanted to. I just never really wanted to. Debbie enjoyed it though, and the clothes she made were very nice. It was something she shared with her mother…that ability to sew and to enjoy doing it.

Debbie also took up cross stitch and for years made pictures that she sold at the many craft fairs that she and several other family members had booths at over the years. For the most part, the cross stitch projects were done by Debbie and Brenda, but there were a few others in the family, myself included. Nevertheless, Debbie made a number of sweet pictures to give as gifts to many people in the family, and we who have received them, have cherished them ever since we got them.

More recently, Debbie got into quilting, and like most people who find that they like quilting, she found that it was maybe her calling. I’m not sure when she got started exactly, but I remember that while her dad, Walter IMG_5172aIMG_5180Schulenberg was alive, she made a quilt for him. I don’t recall exactly if she made the original one for him, but I think she did, and then, because of how cold he always got, she actually took it apart and turned it into two lap quilts. Now that ability really impressed me. It is one thing to make a quilt, but then to alter the quilt in such a way…well, that takes a degree of talent, especially when the quilt had the frayed edges that are so popular these days.

After Dad’s passing, we, the kids and children-in-law, decided that since Mom was in a nursing home now, we wanted to turn their old clothes into quilts to be cherished memories for all of us. We weren’t sure how big they would be able to be, and we had asked a family friend, Linda Hall to make the ones for the five living children. Then Debbie approached me and said that she had really wanted to help with those, so it was decided that she would use part of the material to make memory quilts for the grandchildren. Those were exciting days of anticipation for the children and the grandchildren. It was such a great idea that my sister-in-law, Brenda Schulenberg had come up with.

All of the quilts were finished between Thanksgiving and mid-January. They were such a blessing to receive. IMG_5168aIMG_5177Both of the girls did a wonderful job on them. Debbie has now decided that she wants to make a set for the great grandchildren, and we are all looking forward to seeing those too. What a blessing that will be for the great grandchildren, some of whom have never even met their great grandfather, or their great great grandparents, whose clothes will also be used in these, but will now have a memory of them anyway. We can’t wait. Today is Debbie’s birthday. Happy birthday Debbie!! Have a great day!! We love you!!

grandpa spencer125_edited (6)When brothers don’t live in the same town, and in fact live miles from each other, it is easy to find that your brother has changed so much that you don’t recognize him. Such was the case for my Uncle Bill Spencer, and my dad one time when I was a little girl of about eight years. Of course, under normal circumstances, Uncle Bill would have recognized his brother…even if it had been a few years since he saw him last, but my dad had a couple of secret weapons up his sleeve. Dad had grown a beard, which is something he never wore, but this was a special occasion…a centennial celebration, and contest. Since Uncle Bill had not seen him with a beard much, he was at a distinct disadvantage.

Another reason that my dad was able to pull one over on his brother is that Uncle Bill was a gun dealer at a gun show, and he never expected his brother to show up there. When we arrived, there were a lot of people milling around. While we stayed out of sight, but where we could watch, Dad went over and started looking casually at some of the guns Uncle Bill had. Uncle Bill was used to letting people take their time, and was waiting to see if anyone had any questions. He simply wasn’t expecting his brother to show up at the gun show, and so he actually looked right through him, Dad's beardpaying no more attention to him that he was to anyone else. When Dad finally asked him a question, it still took a moment for him to connect that this was his brother, because Dad did not look like himself.

I’m sure that Uncle Bill was shocked to find that not only was his brother at his gun show, but he had successfully pulled one over on him. The brothers were always joking around, and to be so successful as Dad was in fooling his brother was the ultimate prank in a long line of good natured spoofs that the brothers had played on each other over the years. I can’t say that Uncle Bill never pull a better prank on my dad, because it is entirely possible, but this particular prank was one that was not forgotten, and was probably ranked up there as one of Dad’s best pranks.

This past summer, my mom, sister, Cheryl, and I had the chance to go to Wisconsin and visit Uncle Bill in the nursing home where he lives since Alzheimer’s Disease made it impossible for him to live alone. Because it had been nine years since we last saw him, the memory loss from Alzheimer’s Disease was quite pronounced for us…even though it had actually progressed at a normal pace. We were pleased that while he did not recognize us for ourselves, he did know who we were once we told him that we were his brother’s family. As is common with Alzheimer’s Disease, the patient has good days and bad days. These good days are Cheryl, Caryn, Uncle Bill, Collenedays when their memory is better than other days. We were so blessed in that while most of the conversation centered around the past, Uncle Bill was able to remember and relate much of it to us. It was sad to leave him, because we don’t know if we will see him again in this life or not, but knowing what I do of Alzheimer’s Disease, I know that as quickly as we left, he had forgotten that we were ever there…a blessing in some ways. He didn’t have to feel the sadness of parting that we did. He didn’t even remember that we had been there, but that’s ok, because we knew that we had been there, and he enjoyed the visit while it was taking place. Today is Uncle Bill’s 93rd birthday…an amazing accomplishment for him. Happy birthday Uncle Bill!! Have a wonderful day!! We love you very much!!

Mom SchulenbergWhen Bob and I arrived at the nursing home where his mother lives, she immediately asked us if we had our guns. We usually go with the flow when talking to her, because with Alzheimer’s Disease, you just never know what she will say. She gets an idea into her head, and she goes with it. Things like telling us she cooked dinner, or asking what time she has to be to school are common topics, but she hasn’t talked about guns very much, so I wasn’t really sure what direction this conversation was going to take. When I told her we didn’t have our guns, she gave me a sideways glance, and I knew this was a serious conversation. She then told me that when “those guys” get here, we are going to start shooting at them. I told her that it was against the law to shoot at people, and she informed me that it wasn’t if they shot at us first. You just can’t argue with that logic, so we tried to change the subject. She was having none of it.

She told us that we needed to close all the windows and turn off all the lights before “those guys” got here…and Staged hold upthat when the shooting started…it was going to be really bad. It was very clear to me that she was anticipating a real shoot out. It isn’t very often that she is impossible to move off of a conversation and on to something else, so we knew that we were going to have to play this one out. I told her that no one told us that we were supposed to bring our gun, and once again, I received a sideways glance that told me that she really did not approve of our severe lack of preparation for this upcoming battle. I’m not sure how I was supposed to know that we needed to bring our gun, but I can say that since she had informed us that “the boys” called and told her about “those guys” who were coming to have this shoot out, It seems to me that she had a definite advantage over us. If “the boys” took the time to call her, maybe they should have called us too, since it was to be our job to protect Mom from “those guys” after all. Shouldn’t we have been told this responsibility was coming before “those guys” were on their way…with guns!!

When we took Mom into the dining room for dinner…again trying to get her mind off of the upcoming battle, she still would not be moved. She made Bob close the blinds in the room, in case “those guys” showed up gun fightbefore she was done eating. When Bob told her that he was pretty sure they wouldn’t be there before we could get done, she didn’t look very convinced. Bob had to tell her that as soon as she was done eating, we would go out of the dining room and sit in a room with no windows, so she would be safe. She ate her dinner quickly and without any arguments, and when she was done, we went into the TV room. We were sure that it was a protected room without any problems, but she immediately noticed that the blinds across that room were open too, so we had to close those as well. We assured her that she was safe now. Then she said that pretty soon, they would be getting ready to call out the numbers. Suddenly, it became crystal clear that the shoot out was over, and…we were on to Bingo.

Tucker - 7 years oldMy nephew, Tucker Birkey likes girls, provided they aren’t too much older than he is. Tucker is a typical seven year old boy, and little girls are very interesting, but when it comes to older girls…like aunts and such…well, he’a little bit too macho to be seen hugging them. It might be ok if none of his friends see it, but in reality, he would feel a whole lot better if he could just wave and call it good. Of course, you know how aunts are. We like hugs from our nieces and nephews, and we don’t always consider their feelings. I would probably feel bad about this situation, but like most aunts, who love their nieces and nephew, those hugs are simply important. I mean, lets face it aunts love their nieces and nephews.

For Tucker, at seven years of age though, girls usually have cooties, and I don’t know for sure, but maybe the older girls have more cooties than younger ones. 199325_10150121801297236_5242878_nA while back, Tucker was visiting his grandma, my mother-in-law, Joanne Schulenberg at the nursing home where she lives, and when the visit was over, another of the elderly women mentioned that Tucker was cute. She asked if she could give him a hug. His mom said yes, and Tucker…not knowing what he was getting into, obediently gave the woman a hug. All seemed to be ok, until she planted a kiss on his cheek. It was an innocent enough thing for an old lady to do, and Tucker did his very best not to make it a big deal. Nevertheless, as he walked away with a scrunched up face, that was filled with disgust, he was trying in vain to scrub away that kiss. I never really thought of old ladies having cooties, but I guess to an almost seven year old boy things could seem very different.

196457_10150121813422236_1356812_nThe thing that really amazes me though is that while a little boy, like Tucker is completely grossed out by the kiss of an aunt or an old lady in a nursing home, having his dog lick his face is nothing more than funny. There seems to be nothing gross about that at all. I guess it has to be a dog owner thing, because I know that I don’t exactly like being licked by a dog. Tucker, on the other hand loves everything about his dog, and I’m pretty sure a doggy kiss would be no problem. I’ll bet Tucker doesn’t even think about cooties when it comes to doggy kisses. All I can say is that I think Tucker and I have very different ideas about where cooties come from. Today is Tucker’s birthday. I think my gift will be…no cootie filled aunty kisses. Happy birthday Tucker!! Have a great day!! We love you!!

Dad SchulenbergTime flies by so fast sometimes, and suddenly we find ourselves a year out from an event that shook our world…the death of a loved one. It was one year ago today that my father-in-law, Walter Schulenberg passed away. He was a quiet, gentle man who loved his family more than anything else in the world. He hated the years when his job took him away from the family, because watching his children grow up was so important to him. From the time they were dating, he talked about when they would start having children. He knew that he wanted a little girl, just like his soon to be sister-in-law, Margee, who was just six months old when they got married. Of course, he wanted sons too, but he was smitten with those girls, and while his boys were his helpers, and he was very proud of both of them; his little girls were always his little princesses. That seems to be the way life is for daddies of daughters, and he was no exception to that rule.

I never met someone who was more excited to be a grandfather. When I was pregnant with Corrie, his first grandchild, he seemed to have been transferred back all those years to when his children were little. He often asked me how I was doing. He wanted to be sure I was comfortable…because I was carrying his first little grandbaby. He made it such an honor, both times I was pregnant. His children and grandchildren were so important in his life. In fact they Mom & Dad Schulenberg_editedwere the most important things in his life…with one exception…the love of his life, my mother-in-law, Joann Knox Schulenberg.

From the time they started dating, he knew that there was no other girl for him. I have had the opportunity to read some of the letters they wrote back and forth while they were dating, and he was working in another town. He wanted nothing more than to marry her and take care of her for the rest of his life…and that was exactly what he did. All those years that they were together, he made sure she had what she needed. When she was diagnosed with Alzheimer’s Disease, he gave up much of what he would like to have done, so he could take care of her. She was his world, and to him, giving up a few little things to make sure she was going to be alright, was only natural. As the years flew by, he devoted more and more time to taking care of her, and did more than he should have in those later years…I couldn’t get him to stop overdoing it. To him, it was so important that she was always going to be ok.

The hardest thing I think he ever had to do was when we had to put her in the nursing home. It had become obvious that we couldn’t keep her safe at home, and there was no other option. He really took that hard. He was so lonely. We did our best to take him to see her, but that was hard on him too. Then he went through a series of hospital stays in a short period of time, and they left him very weak. The hospital suggested that he go into a nursing home, and he was very much against it…at first. Then I talked to the nursing home my mother-in-law was in, and they said they could take him too and they could share a room. It was a perfect plan. He could see her, stay with her, and make sure she was alright, all while he was taken care of too. It seemed the perfect plan, and in a way, I guess it was…except for the fact that he just 84couldn’t bounce back from those bouts in the hospital, and would return 3 more times before it was over. The thing that was good for him was the fact that, not only could he be near the love of his life, but before he left us, he was able to see that she would be alright. He could see that the staff took good care of her. That last year was a really hard one for my father-in-law. He was getting tired of fighting COPD. It was a fight for every breath, and he knew he was losing that fight. Still, he could not go, without knowing that those he loved…especially the love of his life, were going to be ok. Dad left us a year ago today, and while we know that he isn’t suffering anymore, we still miss him very much. We love you Dad.

Bob's momMy mother-in-law has had Alzheimer’s for ten years now. As most of you know, Alzheimer’s Disease steals the memories of it’s victim…especially the most recent ones. I have not always been one to feel like every part of recent memory loss is the most horrible thing that could happen. The main reason I feel this way, is that people who don’t remember that a loved one has died, never have to mourn their loss…unless people remind them. My mother-in-law talks about her husband, my father-in-law, Walter Schulenberg, now in Heaven for almost a year, in the same way as she does her daughter, my sister-in-law, Marlyce, and her parents, Robert and Nettie Knox, who have all been gone now since the 1980’s. To her, they are all still here, and she will see them later in the day. I can’t think of a better way to feel.

For her, it isn’t the middle of life memories that are missing, but rather, the recent memories, and the very distant past that elude her to a degree. For me, those are the ones that make me a bit sad. She doesn’t remember new family members, from marriages, or births of new great grandchildren. You can tell her who they are, and within five minutes, you have to tell her again. It isn’t an annoying thing, but rather a bit sad. As to her distant memories, she never really was one to relive her past a lot, so it is not unthinkable that she might not really remember those, but as a writer of moments past, that feels like a real loss to me.

Recently, while watching a television show, I got an idea. One of the characters had Alzheimer’s Disease, and couldn’t remember all the people he had helped in his career, until the other characters put together a DVD of all the people that the Alzheimer’s victim couldn’t remember. I started thinking about what a great idea that was. Maybe there was a way to give some of the forgotten memories back to my mother-in-law. The only problem I could see was that she would never be able to run a DVD player, and the staff was too busy to plug a DVD in for her all the time. It’s just too easy to forget, and then she never gets to see it.

Then it hit me. There is a way to get a great collection of pictures together, that she will be able to see every day, and no one will have to plug it in or turn it on for her. I started looking online for what I needed, and I found the perfect item. It was a 19 inch digital picture frame that has a built in timer to turn it on and off. I was so excited. We, the family bought the frame, and I have been loading pictures onto it. It now has about 2,000 pictures from different parts of her life, for her to look at when she is in her room at the nursing home. And there is still room for more. And no one has to run it. It has a timer, so it will run from 7:00 in the morning to 9:00 in the evening. Whenever she is in her room, it will be running, until bedtime.
image
Bob and I took the frame out to her on Saturday, and set it up. She really liked it. I was so excited about that. As I told her about some of the pictures, she looked on with great interest. Then came the moment when she knew the person in the picture, and finally the moment when she told me the name of one of her childhood horses…Star!! I was soooo excited!! I know that as she watches the frame, she will remember things about her past, at least for a little while. The digital picture frame has become the talk of the nursing home. All the nurses and aids rave about what a good idea it was. I’m just so happy that we are giving her memories back to her.

Marie BurgessWhen you have a family member in a nursing home, and you visit them often, the other residents of the nursing home soon become…almost like your family members too. You get to a place where you know their names, their personalities, and their funny little quirks. Of course, I’m not going to tell their names, even though I know them, but there are the two old ladies that didn’t know each other until they went to the nursing home and became roommates. Now everyone calls them the twins, because they are inseparable. They may not know where they are going, but they will be going there together…and together, they wander the hallways, always smiling and totally happy.

There is the little old lady who is often the first one to tell you hello when you walk in the door, and she doesn’t mind giving medical advice if you have a cough or some other simple ailment, because “she raised 7 children, so she knows what to do for a cough” and for just about any other ailment. She isn’t pushy though, she just wants to be helpful. There is the little old lady that walks down the halls and out of the blue, she just starts dancing a jig, and can even click her heals. While her mind doesn’t work as good as her body, she is perfectly happy and content in her surroundings. Of course, every nursing home has the sad ones and the grouchy ones, but many of them are happy and cheerful, and they always put a smile on my face.

The one that really surprised me the most though, was my mother-in-law’s roommate. She is a happy little lady and quite talkative when you get to know her. She will tell you that she was “born in Oklahoma 94 years ago, and that is the place where the tornadoes are…you know”. It wasn’t the things she said or the way she acted that surprised me, but rather…the way she looked. I mean, who would have guessed in a million years that my Grandma Hein as we knew hermother-in-law would end up sharing a room in a nursing home with a woman who looks so much like her mother-in-law. Yes, grandma was 10 years older than mom’s roommate, and Grandma never made it to 94, but I can easily imagine that she might have look just like her if Grandma had made it to 94. It makes me feel kind of good about mom’s roommate, because when she talks to her, it seems like she knows her, and maybe she thinks she is her mother-in-law. The other day she told her, “I was wondering if you were coming in.” It was just like something she might have said to her mother-in-law…like she thought her roommate was her mother-in-law, and it wouldn’t surprise me at all if she did.

Mom & Dad Schulenberg_editedWhen you lose one parent, you feel a like half of your world is messed up. You still have the other parent, but it still doesn’t feel right…doesn’t feel the same as it used to be. I have felt that kind of loss twice in my life, because when you marry into a family, you gain a second set of parents. Having in-laws can be good or bad depending on the relationship you build with your in-laws. For me it was a good relationship, so when  my father-in-law passed away, it was my second dad that passed away. I have noticed something quite different with my father-in-law’s passing, from my dad’s passing.

While both mothers are still alive, and in my family, that is a more stablizing fact, in Bob’s family, it is not so much the case. Since his mother has Alzheimer’s Disease and is in a nursing home, it feels almost like she is gone from us too, in a sense. It isn’t that we don’t go see her often, because we do, but because she doesn’t have any input in family matters. It almost feels like the family is adrift at sea…in separate boats!! Everyone is busy doing their own things, and living their own lives, but that creates a feeling of disconnect in my mind. While some family members call each other and talk about things, others don’t. Some I haven’t heard from since the end of May, when we had Brenda’s birthday party. It is a bit of a lonely feeling.

Other family members, I talk to often, of course, and it is my hope that the family will regroup and become as strong as it was before. I’m sure everyone is just trying to deal with everything in their own way, but for me, it just seems like some of the family has grown farther apart from the rest of us, and I think that is sad. I’m one of those people who likes close family ties, and not talking to the family much is, well…as I said before, like being adrift at sea…in separate boats.

GG Gpa, Amy, GG Gma CorrieGG Gpa & GG Gma KnoxAs Corrie’s birthday draws near, I am reminded of another of her birthdays…her first. Corrie’s birth put her in close connection with her great grandmother, with whom she shares that birthday. Her first birthday put Corrie, and her little sister Amy, in touch with the only set of great great grandparents they ever got to know…the in-laws of the great grandmother with whom Corrie shares her birthday. It would be their only meeting with their great great grandfather, as he would pass away less than two months later, on August 28, 1976, at the age of 93 years. He had not been ill or in a nursing home, but rather lived in his own home all the years of his marriage. His death came after he fell off of a ladder, while doing home maintenance…at the age of 93!! How amazing is that?

That first meeting between, great great grandparents and great great granddaughters was so special. This loving, sweet couple holding my daughters, was such a precious sight for me. You could just see how they felt about my girls, and it was a beautiful moment. In fact, it was at that very moment that Bob and I decided that we needed to go visit them again…soon. We wanted our girls to have a relationship with these loving people. We did make the trip to see them in late September, but it was too late to see their great great grandpa, and that made me very sad. Such a kind, loving man was gone before we hardly got to know him.

The visit to Washington to see Great Grandma was a precious one. Amy was too little to remember it, at almost 4 months, but Corrie and her great great grandmother got along famously. Great Grandma allowed Corrie to explore her home and play with the pans in the kitchen, and when I tried to stop Corrie from making messes and so much noise, she told me to let her play, because she loved to see her youthful curiosity and her smiling face. She even sent Corrie home with a little chair that she loved to sit on…it was over 100 years old then, so it is about 140 years old now…and still a treasure to Corrie.

The girls would get to see their great great grandma again, and she would also meet Amy, Corrie, Great Great Grandma Knox, Machelle and BarryCorrie and her little chair todayanother great great granddaughter, Machelle and her great great grandson, Barry the next time she visited. The kids all had a wonderful time on that visit too. She was just the kind of person kids flock to. She continued to live in her home for most of the rest of her life, and stayed active and of sound mind for all of it. These were amazing people and such a great part of my children’s heritage. I feel very blessed to have known these special people.

Mom SchulenbergBob and I went out to the nursing home to visit his mother on Saturday, and very uncharacteristic of her, since she got Alzheimer’s Disease anyway, she was very talkative. She was telling us about her day…at least as she remembered it. Her story moved from one scenario to another, making little sense, unless you knew some of the characters, and the places she was talking about. The other problem with her story was that it spanned at least 6 decades, and they were all intermingled. Probably the most disconcerting part of the story, however, was the fact that she was talking about Bob and me, almost like we weren’t there, and yet at other moments, she talked to us, knowing who we were. It was very strange to feel the need to speak of myself, as someone else, so it didn’t confuse her. It was also strange to shift gears, when she asked me what I was making everyone for the dinner she had decided I was cooking.

I’m sure a lot of people would have been a little bit freaked out by this strange visit, but with Alzheimer’s Disease, that is somewhat normal. The main reason it isn’t very normal, is that many Alzheimer’s patients, including my mother-in-law, don’t usually talk so much. It was quite an interesting conversation, really. She mentioned several family members, including Bob and me, our daughters, Corrie and Amy, and two of my grandsons, Chris and Josh. She also mentioned my brother-in-law, Ron, and my nephew, Barry as well as my sister-in-law, Jennifer. Then she mentioned the names Adolph, Brady, and Cody…names that made no sense to me, and two of which will most likely always be a mystery. Adolph and his wife Loretta, apparently were good friends of my in-laws, a long time ago.

It was very strange to know that she knew who we were, and yet also had a picture in Growing Old Togetherher memory of what we looked like 30 years ago. The two pictures seemed like two different people in her mind, so it made perfect sense that she would be talking to us and about us at the same time. I suppose many people would find that sad, and think of Alzheimer’s disease as a horrible thief, and to a degree, they would be right, but so much of this disease…if looked at with the right mindset…can be found humorous. Yes, she makes up her stories, but they are about things in her past. Yes, she doesn’t always know us. But there is a lot to be learned there too. I never knew about their friends, Adolph and Loretta, but maybe someday she will tell me a little bit more about them…perhaps, in another story session.

Enter your email address:

Delivered by FeedBurner

Archives
Check these out!