The excitement of having a baby is hard to contain. But, finding out that something is wrong is so completely opposite of that excitement, that it has the ability to make you feel like you are dying, even though you have none of the symptoms of impending death. Those feelings come from the unsure future that you and your baby now face. Your thoughts turn to wondering how you are going to deal with all these new challenges. This is where the parents of a child suspected of having Down’s Syndrome, or any other disability find themselves…and where my niece, Cassie and her husband, Chris found themselves two years ago…and Down’s Syndrome was what little baby Lucas was diagnosed with. I’m sure that Cassie and Chris felt all the normal fears, but they bounced right back and have proven themselves to be very capable parents. Lucas is a blessed little boy!
I suppose that you might think that this is a sad story of shattered hopes and dreams, but you couldn’t be more wrong, because Down’s Syndrome is what Lucas has…not who he is. There is no room for sadness in the home that Lucas shares with his mommy and daddy, because Lucas is a happy, smiling baby, who leaves no room for sadness or regret over what might have been. Lucas loves with all he has, and brings so much joy to his parents’ lives, that they simply can’t see how they could be any happier.
There is no sadness in this family because of Down’s Syndrome, because that is just not what defines Lucas. Instead, there are giggles and smiles. There are all the firsts that every baby has…first tooth, first time crawling, sitting up, and so many other milestones. It may take Lucas longer to do these things, but he will do them. There is nothing holding him back. People with Down’s Syndrome can and do live very productive lives.
There is no room for sadness in the home where Lucas and his parents live…because it is too full of love for sadness to have any space at all. Sometimes, people think that the parents of a disabled child are always thinking of their hopes and dreams, now all crushed into the dirt, but that just isn’t so. Lucas is making new strides every day. His future is as bright as his smile, that is filled with new little teeth. There is nothing standing in the way of success and a happy life for him and his parents. Today is little Lucas’ 2nd birthday. Happy birthday little man!! Have a wonderful day!! We love you!!
It was one year ago today that Princess Laila entered our lives, but her time with us was not to be very long. She would leave us to live with Jesus 18 days later. With her passing, would begin a sad journey toward the healing of our broken hearts. Laila was the answer to her parents’ prayers. Jenny and Steve have three wonderful and healthy boys, and they wanted a girl to complete their family. Laila was to be that little princess…and a princess she was, beautiful in every way. She was and is loved by all who knew her, or awaited her arrival.
Laila’s time with us would be cut short due to Hypoplastic Left Heart Syndrome, which means that the left ventrical of the heart is too small or is non-existent. The heart should have 4 chambers, and Laila’s 4th chamber was too small, and could not effectively pump blood to her body. The doctors tried surgery to repair Laila’s heart, but her little body was just not strong enough, and she went home to be with Jesus on November 22, 2010…and very sad day for all of her family.
It is so hard to believe that a year has come and gone since Princess Laila would change our lives forever with her sweet spirit. Today was to have been a day of celebration…her first birthday…a day to celebrate all those little firsts…first tooth, first word, first steps…but it was not to be. Instead, Princess Laila, we wish you Happy First Birthday in Heaven, where you are being held in the loving arms of Jesus, and where your heart is perfect and whole. I know that you, Grandpa, and Alyssa, along with all your other Heavenly family members are having the greatest first birthday celebration ever. We only wish we could all be there with you today as our baby girl turns one year old…but know that we are with you in spirit, as we know you are with us.
Jenny, Steve, Xander, Zachary, and Issac, I know that your hearts are very sad and lonely today. I know that as God’s Word says, He has sent you the Comforter to hold you is His arms, just as Sweet Princess Laila is being held in Jesus arms today. I know today will be very hard, and I am keeping you in prayer. The day is coming when we will all be together again, and I can’t wait to meet your precious Princess Laila. I love you all very much.
Few things are more exciting in the life of a young child than the day they lose their first tooth. Everyone knows what comes next. The tooth is placed in a glass of water, or under a pillow, and the child tries really hard to go to sleep, because they know that in the morning, there will be money, and sometimes gum, in place of the tooth that was lost.
I will never forget the day my oldest daughter, Corrie lost her first tooth. The tooth had been loose for a while, and she wiggled it constantly. She wanted it to come out so badly. For days that was all she thought about, and all we heard about.
Then one night…in the middle of the night, I awoke to Corrie screaming. Now when you come out of a deep sleep to a child screaming…and I mean a blood curdling scream…it can be hard to get your bearings. I tried sleepily to figure out what was wrong, thinking she had a bad dream. She screamed, “I’m bleeding” and showed me her mouth.
Ok, I was awake, and my mind had it all back together again. we rinsed out her mouth and I looked to see if the tooth was loose enough to pull it out. I tried to get a hold of it, and couldn’t. I said that it just wasn’t quite ready yet. Corrie said, “Just push it Mom!” And with that, she pushed the tooth toward her tongue, and out it came. I couldn’t believe that my 5 year old knew more about how to get her first tooth out, than I did.
Corrie’s teeth never presented any problems. She would go on the “push” them out easily as each became loose enough. Her sister, Amy’s teeth…well, that is another story.