Macular Degeneration

My aunt, Jeanette Byer is an amazing woman. She refuses to let anything shut her down. She pretty much goes non-stop. You might think that’s not such a big deal, but my Aunt Jeanette is 88 years old…she just acts like she 60, or maybe she has convinced herself that she is. To make matters worse, Aunt Jeanette’s eyesight is failing, with Macular Degeneration. Many people would just sit down and quit in that situation, but Aunt Jeanette just keeps plugging along. Whatever it is, it works for her. Every day, she heads out to goes for a walk around her apartment complex…twice. If the weather is too cold, windy, or stormy, she just walks the halls of the building. I am so proud of how hard she works to stay independent. That isn’t an easy thing as we get older. Staying active and independent is a lot of work. You can’t take many days off, or you will never get back. Aunt Jeanette doesn’t take days off. She goes and goes. The words “give up” are just not in her vocabulary.

Aunt Jeanette is always a happy and smiling person. She is always trying to make sure that everyone has what they need to make them comfortable and happy too. Aunt Jeanette is a social person and enjoys social exchanges with other people in her building. She has been known to sit in a chair near the apartment complex entrance, and simply start up a conversation with the people in the building. Some people say, “Hello” and simply move on, but some will sit and visit with her. She like making new friends, and that is a perfect way to “get the ball rolling” on a new friendship. Sometimes it might take a few tries, but once people get past the initial surprise of having a random person start talking to them, they begin to feel comfortable with it and a new friendship is made. I’m sure lots of people might find this strange…at least until they realize that they now have a new friend. Too many people are so isolated in their own little world, that these social situations slip past them unnoticed, and later they wish they had not been such an isolationist.

Aunt Jeanette loves to go to the casinos. The flashing lights, clanging bells, and, the possibility of that “big win” are a fun break from the everyday. Because she is a social person, the casino satisfies her need to be with people too. She isn’t a gambling addict. She just enjoys the occasional game of chance. There’s nothing wrong with that. It’s a nice outing for her and her daughter, Tina Grosvenor. They head out and make a day of it. I’m glad Tina takes her mom to have a little fun. Today is Aunt Jeanette’s 88th birthday. Happy birthday Aunt Jeanette!! Have a great day!! We love you!!

Our aunt, Charlys Schulenberg has been through a lot in the past year. She began having some Neuropathy in her legs and feet. Uncle Butch took her to several neurologists trying to find out if there’s a cure for her. The doctors all say they know of none when it gets that bad. One doctor believes that it all started a couple years ago when her red and white blood cells dropped to a seriously low level. She was very weak. They put her in the hospital and found out that she had no cooper in her blood. So, they gave her copper via IVs. This brought her blood back up, but not high enough. They believe the low copper caused her Neuropathy. They also think that there was too much Zinc in the vitamins she was taking. Apparently, too much Zinc can deplete the copper in your system. So, they got rid of all vitamins that had Zinc in them. Meanwhile, she was home waiting to go back to Billings for another week of IV copper infusions. While she was home however, she, being a very determined lady, refused to take this lying down. She was getting around with a walker, but she was really shaky.

Because of all that, she wasn’t supposed to be cooking. Uncle Butch was doing the cooking. They were going to have spaghetti, but they needed French bread and other groceries, so he went down to store. When he came back 45 minutes later, Aunt Charlys was laying on the floor. She had decided to start the spaghetti, and as she was boiling the spaghetti, her feet went out from under her. She hit the pan of boiling water as she fell, and the pan fell on her, spilling the boiling water and hot spaghetti in her lap causing 3rd, 4th, and 5th degree burns from her knees to her chest. Uncle Butch called an ambulance, and they got her to the hospital, and then, she was flown to the University of Colorado Burn Center. While her burns must have kept her in excruciating pain, Aunt Charlys never lost her sense of humor. She joked with the nurses, even though she was the one in so much pain. She has proven herself to be one tough lady.

After a month in the burn center, she was transferred to the hospital in Forsyth, Montana where they live. She spent another month in the Forsyth Hospital. While she was there, she continued joking and just being herself…always positive and happy. I’m sure that like me, the nurses, doctors, and other staff couldn’t believe that this lady, who was in obvious pain was so cheerful and positive. She has never lost her positive attitude. Her burns soon healed and all that’s left is the scars. Uncle Butch is very proud of her, and so is the rest of her family. Charlys is such a sweet, loving person, and I am so thankful that she is still with us.

Because the Neuropathy in her legs is so bad, she came home in a wheelchair. She couldn’t walk. Uncle Butch got the house set up so she can do things herself. They pulled the carpet up and installed posts by the bed and in bathroom and grab bars in the shower area. When she first came home, Uncle Butch had to help her with bath and bathroom needs, but in true Charlys style, she was determined to do things herself. She worked very hard to make a way for herself. Now, with help of a special chair and the bars on wall, she does many things by herself. All Uncle Butch has to do is stand by to make sure she’s alright. She can pull Herself up out of wheelchair and get things out of the low cabinets. She has one of those two wheeled walkers with solid back legs, and she gets a little further walking with it each day. Uncle Butch says that at times her feet and legs just jump all over the place.

They were scheduled to start copper treatment a couple days before the accident, but they had to cancel that. Meanwhile, their daughter, Andi Kay got a hold of the doctors at the burn center and told them about her copper deficiency. They didn’t want that to continue, so they placed a tube in her nose, that went to her stomach, and fed her copper and drugs straight into the stomach., finally bringing her copper and her red and white cells to normal, Praise God!! With the excellent treatment she was given, she was very soon back to being her old spunky self. Unfortunately, they don’t believe that the damage is done in her feet and legs from the Neuropathy, is reversable. So, she’s in a wheelchair or walking a little with her walker. Meanwhile, being the culinary expert that she is, she has the up the task of “teaching” Uncle Butch to cook, with her supervision, of course. She makes sure to tell him what to do next, even if he probably already knows, but that leaves her basically running the show, and that what is most important. She has been struggling with Macular Degeneration in her eyes, so Uncle Butch reads her the recipes, as well as a lot of articles from papers, a true mark of his love for her. She also has a magnifying glass, that has a small light, and she uses that a lot too.

Their grandson, Christian is living with them and working as a CNA at the Forsyth Hospital. That has been such an amazing blessing. He has been a great help to them. He loves his grandma “to pieces” and gives her all his attention, and the love is “reversed” to him too. Uncle Butch thinks that she wouldn’t be as happy, if Christian wasn’t there. Uncle Butch thinks through all that has happened these last few years, it has only served to bring them closer to one another. They got Aunt Charlys a small electric wheelchair that folds down and is real light. I didn’t know they made folding electric wheelchairs, but it is awesome!! It slides into a trunk or a pickup. She can go shopping with it now. They went to Walmart in Miles City last week, and she had a blast!! Uncle Butch says that you have to watch her, or she’ll run over your feet…kind of like a fifteen-year-old with a driver’s permit, hahaha!! The good news is that now that she has it, she can get out more. Charlys is full of life yet, even with all the problems. Uncle Butch says, “She’s a fighter and she dang sure doesn’t give up.” It’s a miracle that could only be God and the excellent people He placed at the hospitals and at home to care for her. Today is Aunt Charlys’ 82nd birthday. Happy birthday Aunt Charlys!! Have a great day!! We love you!!

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