Hypoplastic Left Heart Syndrome

With each passing year, we imagine what Laila might have been like. Seven years ago today, my niece, Jenny Spethman and her husband, Steve welcomed their first daughter into the world. The birth was one of happiness and concern. Their daughter was not well. Her heart was not properly formed…a condition called Hypoplastic Left Heart Syndrome, had left her left ventricle underdeveloped. Little Laila would go to Heaven just 18 days later, and just like that, her little life on earth would be over…but not her memory. No, her memory will live forever in the hearts and minds of her parents, grandparents, siblings, and the rest of her family. It’s amazing to me that a child I never got to meet could continue to impress my mind, and the minds of the entire family, with pictures of who she might have become.

At 7 years of age, I can picture the little first grader she would be now. In my minds eye, I can picture her little face with the changes that seven years would bring. I can imagine her laughter, very much like her little sister, Aleesia’s, and a personality to match. I think that when a child is lost, the family tends to look at other children who are the same age that lost child would be, and it is so easy to place the lost child in the same activities, looks, and personalities. Of course, it’s not exact, how could it be, but it’s enough to truly imagine what the lost child would be like at each age. That’s how it is with Laila. It’s how we can imagine the little girl she would be.

Laila left us far too soon, but her memory will live in our hearts forever. From her, we learned not to take life for granted. We learned to take the pictures of even the littlest, most insignificant event, because it may end up being very important. We have learned to spend time with those we love, and to tell each other how much we love each other. We will see Laila again in Heaven, but for now, we all miss her very much. Today would have been Laila’s 7th birthday. Happy birthday in Heaven Princess Laila. We love you.

It was one year ago today that Princess Laila entered our lives, but her time with us was not to be very long. She would leave us to live with Jesus 18 days later. With her passing, would begin a sad journey toward the healing of our broken hearts. Laila was the answer to her parents’ prayers. Jenny and Steve have three wonderful and healthy boys, and they wanted a girl to complete their family. Laila was to be that little princess…and a princess she was, beautiful in every way. She was and is loved by all who knew her, or awaited her arrival.

Laila’s time with us would be cut short due to Hypoplastic Left Heart Syndrome, which means that the left ventrical of the heart is too small or is non-existent. The heart should have 4 chambers, and Laila’s 4th chamber was too small, and could not effectively pump blood to her body. The doctors tried surgery to repair Laila’s heart, but her little body was just not strong enough, and she went home to be with Jesus on November 22, 2010…and very sad day for all of her family.

It is so hard to believe that a year has come and gone since Princess Laila would change our lives forever with her sweet spirit. Today was to have been a day of celebration…her first birthday…a day to celebrate all those little firsts…first tooth, first word, first steps…but it was not to be. Instead, Princess Laila, we wish you Happy First Birthday in Heaven, where you are being held in the loving arms of Jesus, and where your heart is perfect and whole. I know that you, Grandpa, and Alyssa, along with all your other Heavenly family members are having the greatest first birthday celebration ever. We only wish we could all be there with you today as our baby girl turns one year old…but know that we are with you in spirit, as we know you are with us.

Jenny, Steve, Xander, Zachary, and Issac, I know that your hearts are very sad and lonely today. I know that as God’s Word says, He has sent you the Comforter to hold you is His arms, just as Sweet Princess Laila is being held in Jesus arms today. I know today will be very hard, and I am keeping you in prayer. The day is coming when we will all be together again, and I can’t wait to meet your precious Princess Laila. I love you all very much.

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